Optimizing Family-Based Home Care to Improve the Quality of Life of Patients with Chronic Diseases

Lestari Lona Lolo; Dewiyanti Dewiyanti; M. Khalid Fredy Saputra

doi:10.61099/jpmei.v3i2.370

Authors

Lestari Lona Lolo Department of Nursing, Universitas Kurnia Jaya Persada, Palopo, South Sulawesi, Indonesia https://orcid.org/0000-0001-6904-1925
Dewiyanti Dewiyanti Department of Nursing, Universitas Kurnia Jaya Persada, Palopo, South Sulawesi, Indonesia https://orcid.org/0009-0001-7109-576X
M. Khalid Fredy Saputra Department of Nursing, STIKes Baitul Hikmah, Lampung, Indonesia https://orcid.org/0009-0004-3269-7815

DOI:

https://doi.org/10.61099/jpmei.v3i2.370

Keywords:

Caregivers, Chronic Disease, Home Care Services, Quality of Life, Self Care

Abstract

Introduction: Chronic diseases remain a major public health concern globally and in Indonesia, contributing significantly to morbidity, mortality, and decreased quality of life. Family involvement in home care has been identified as a key strategy to improve patient outcomes, yet many families lack adequate knowledge and skills to provide effective care. This study aimed to optimize family-based home care to improve the quality of life of patients with chronic diseases.

Methods: This community service program involved 45 participants consisting of patients with chronic diseases and their family caregivers. A six-step intervention was implemented, including needs assessment, program planning, health education, caregiving skills training, mentoring, and evaluation. Data were collected using structured instruments to measure quality of life, medication adherence, and caregiving skills before and after the intervention.

Results: The findings showed a significant improvement in all measured indicators. The mean quality of life score increased from 58.4 to 72.6, medication adherence improved from 61.3 to 78.9, and caregiving skills increased from 55.7 to 80.2. These results indicate that the intervention effectively enhanced both patient outcomes and family caregiving capacity.

Conclusion: Optimizing family-based home care is an effective strategy to improve the quality of life of patients with chronic diseases. Strengthening family capacity through education, training, and continuous support can lead to sustainable improvements in home-based care.

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References

Akyurek, G., Tekin, V., & Gündoğmuş, E. (2026). Caring at Home for Children with Medical Complexity: A study on Family Caregivers’ Burden, Fatigue, and Musculoskeletal Pain. Journal of Pediatric Nursing, 86, 215–222. https://doi.org/10.1016/j.pedn.2025.10.031

Cahya Mulat, T., Hardi, W., & Andani, N. (2024). Community empowerment through home care training to improve the quality of life of patients. Jurnal Pengabdian Masyarakat Edukasi Indonesia, 1(3), 85–92. https://doi.org/10.61099/jpmei.v1i3.54

Chumintrachark, A., Pinyopornpanish, K., Aramrat, C., Pairoj, C., Buawangpong, N., Pliannuom, S., Seesopon, S., Khangtanyakit, M., Nantsupawat, N., Jiraporncharoen, W., Angkurawaranon, C., & Phrommintikul, A. (2025). Perspectives of patients, caregivers, and healthcare providers on how the Heart@Home mobile application improves self-management in heart failure care: A qualitative study. Internet Interventions, 42, 100890. https://doi.org/10.1016/j.invent.2025.100890

Crimi, C., Oczkowski, S., Carlucci, A., Pépin, J.-L., Hafermann, J., Lissina, A., Saunders, R., Alami, S., & Gibson, S. (2026). Organization and delivery of home-based care for chronic obstructive pulmonary disease patients receiving long-term home non-invasive ventilation: a systematic review. European Journal of Internal Medicine, 106880. https://doi.org/10.1016/j.ejim.2026.106880

Cunha, H., Costa, P., & Padilha, J. M. (2026). Translation, cross-cultural adaptation and psychometric evaluation of the Portuguese version of the self-care in chronic obstructive pulmonary disease inventory. International Journal of Nursing Studies Advances, 10, 100469. https://doi.org/10.1016/j.ijnsa.2025.100469

Eltaybani, S., Li, C.-C., Fukui, C., Igarashi, A., Sakka, M., Noguchi-Watanabe, M., & Yamamoto-Mitani, N. (2025). Self-reported quality of life of older adults receiving home care: The feasibility and reliability of new items. Geriatric Nursing, 63, 388–394. https://doi.org/10.1016/j.gerinurse.2025.03.058

Francis, T., Stanimirovic, A., Meerai, S., Shahid, N., & Rac, V. E. (2026). The Effect of Telehomecare on Patients’ Health-Related Quality of Life, Satisfaction, Disease Self-Management Skills, Provider Satisfaction, and Informal Caregiver Strain: Longitudinal Cohort and Cross-Sectional Study. JMIR Formative Research, 10, e70809. https://doi.org/10.2196/70809

Gungor, S., & Akcoban, S. (2025). Change in care dependency and quality of home care nursing assessment levels following home health services in patients receiving home health care. Geriatric Nursing, 65, 103456. https://doi.org/10.1016/j.gerinurse.2025.103456

Honda, K., Takai, M., Hirono, M., Kamono, E., Tamori, H., Tanaka, M., Ogawa, K., & Hoshino, E. (2026). Quality of Life Research in Parents and Informal Caregivers of Children With Chronic Illnesses: A Scoping Review. Academic Pediatrics, 26(4), 103278. https://doi.org/10.1016/j.acap.2026.103278

Lee, J. S.-Y., Cochrane, B., Smith, T. A., Smith, S. M., Foo, S., Garcia, L., & Kemp, T. (2026). A Personalized, Home-Based, Multidisciplinary Outpatient Clinic for Managing Breathlessness in Chronic Obstructive Pulmonary Disease: Protocol for a Single-Arm, Mixed-Methods Cohort Study. JMIR Research Protocols, 15, e85766. https://doi.org/10.2196/85766

Løken, B. H. T., & Rokstad, A. M. M. (2024). Nurses’ experience of advance care planning in home care services for elderly people: A qualitative study. Geriatric Nursing, 60, 693–698. https://doi.org/10.1016/j.gerinurse.2024.10.032

Meregaglia, M., Manfredi, S., Perobelli, E., Rotolo, A., Donati, E., & Notarnicola, E. (2025). Caregiver preferences and willingness-to-pay for home care services for older people with dementia: A discrete choice experiment in the Milan metropolitan area. Health Policy, 152, 105220. https://doi.org/10.1016/j.healthpol.2024.105220

Ridwan, W., Hakim, L., Ristrini, R., & Puspita, T. (2025). Analysis of Environmental Health Conditions in Indonesia: A Study Based on Housing and Environmental Health Indicators and the Indonesian Health Profile. BIO Web of Conferences, 193, 00060. https://doi.org/10.1051/bioconf/202519300060

Ritchie, C. S., & LaRowe, L. (2026). Interprofessional, Integrative Approaches to Chronic Pain Management in Home-Based Medical Care. Clinics in Geriatric Medicine, 42(1), 139–150. https://doi.org/10.1016/j.cger.2025.08.007

Song, P., Yuan, S., Guan, Y., Chen, Y., Ma, H., & Li, Y. (2026). Time toxicity in chronic disease comorbidity care: A concept analysis using Walker and Avant’s approach. International Journal of Nursing Sciences, 13(2), 140–148. https://doi.org/10.1016/j.ijnss.2026.02.004

Suprapto, S., Andi Latif, S., Nurhanifah, D., Yunus, M., & Ajeng Wijayanti, L. (2025). How is Quality in Homecare Services Created? A Qualitative Study of Health Professional Perspectives. Jurnal Kesehatan Masyarakat, 21(2), 485–496. https://doi.org/10.15294/kemas.v21i2.31257

Tirandaz, S. Y., Valizadeh, L., Zamanzadeh, V., Rassouli, M., & Akbari, M. E. (2026). Towards integrated palliative care for cancer patients: A qualitative study of case management using the Chronic Care Model. European Journal of Oncology Nursing, 80, 103063. https://doi.org/10.1016/j.ejon.2025.103063

Veronese, M., Vellone, E., Alvaro, R., & Pucciarelli, G. (2025). The transitional care from hospital to home for stroke survivors and their caregivers: A systematic review. Journal of Vascular Nursing, 43(2), 86–98. https://doi.org/10.1016/j.jvn.2025.03.002

Wang, T., Kong, J., Chen, X., Yang, Y., Liu, D., Liu, T., & Li, L. (2025). Development and psychometric assessment of a care competency scale for family caregivers in home palliative care. Asia-Pacific Journal of Oncology Nursing, 12, 100719. https://doi.org/10.1016/j.apjon.2025.100719

Wang, Y., Lv, R., Wei, X., Zhong, J., Wang, M., Fan, J., Liu, J., & Yang, L. (2026). Informal caregivers’ preferences for self-care support services in caring for community-dwelling older adults with disabilities: A discrete choice experiment. International Journal of Nursing Studies, 179, 105524. https://doi.org/10.1016/j.ijnurstu.2026.105524